Need your prayers

susankat · 06-27-2009, 01:53 AM

My grandson Aiden is less than 3 years old. He has down syndrome. On Thursday my sweet baby goes into surgery to try and repair both heart valves and put in a pace maker.
Please pray that this is a success and that he pulls through it fine.

As next step is if it doesn't work is a heart transplant.

MediaHound · 06-27-2009, 02:47 AM

Prayers for Aiden and the family/friends/relatives. What a difficult time this is for you all, hope he pull through it fine.

fishfinder · 06-27-2009, 03:16 AM

Prayers, and hang in there. Heart problems are a common condition with down syndrome children. Just be there for him and for your children. Its scary to think about a child that young going through this. But he's a little fighter to make it this long without surgery. Hugs for everyone.

JIM · 06-27-2009, 06:11 AM

We will all have you in our prayers, Its so hard to find the words to express the sympathy at a time like this, especially for me when its a child. Just be strong for him, and know we are all beside you.

gypsyfla · 06-27-2009, 12:09 PM

Thoughts and Prayers are with You and Your family

06-27-2009, 01:05 PM

He will be in my prayers. God's blessings to him

susankat · 06-27-2009, 02:16 PM

Thanks everyone. This is his second surgery. The first one was at 4 months old, and we almost lost him then. He was on life support for a week as his heart swelled and stopped beating.

Aiden is such a tiny fellow and that is where most of the problems arise. He weighed a little over 2 pounds at birth due to having to be born 2 months early. He is still under 25 lbs.

susankat · 07-02-2009, 02:01 PM

Aiden is out of surgery and is doing well. Both valves were able to be replaced and the Glenn procedure was avoided. He is in his PICU room and we are waiting to see him.

Chickadee · 07-02-2009, 05:40 PM

You and your family are in my thoughts and prayers and I do hope that he will be in God's hands. May the Lord bless your family each and all.

Rose

susankat · 07-05-2009, 02:18 PM

Aiden has done great this time around. All tubes have been removed, pacemaker is working great. and he may get to go home Monday or Tuesday.

fishfinder · 07-05-2009, 03:19 PM

That is such wonderful news!! My heart has been with you and your family the whole time. You have my hopes for Aiden's continued improvement and peace for the family.

JIM · 07-05-2009, 03:55 PM

That is wonderful news I have had that little guy in my thoughts all week. Im so glad everything turned out so well. Please keep us updated on his recovery.

Oldman · 07-05-2009, 05:30 PM

That is great to hear Susan. We were all pulling for him.

Chickadee · 07-05-2009, 09:12 PM

Great news! So glad to hear it and know it is a big load off your mind and heart. We will continue the prayers for his complete recovery.

Rose

Chickadee · 07-12-2009, 06:42 AM

How is Aidan doing? Did he get to go home and is all well with your family?

Rose

susankat · 07-12-2009, 08:43 AM

Sorry about not updating this. Aiden is at home and doing good. Still having a hard time crawling or using his gait trainer because of being sore, and getting pretty bored. Goes to dr tomorrow so will post more when I get more info.

A little side note. Since he is so small and wont enjoy Disney World very much, The make a Wish program is going to build him a big Disney playground in his back yard.

orion · 07-12-2009, 09:13 AM

still n prayer

sidenote that is awesome about the playground

i have a friend here that has a son that is about the same he belongs to the lil lighthouse org pretty cool stuff wife and i volunteered over there yesterday for a big function.

http://www.littlelighthouse.org/

fishfinder · 07-12-2009, 09:36 AM

What wonderful news about Aiden. And he'll have his own Disney World! The kids are so happy all the time. Later, when Aiden feels better, I hope Mom and Dad will get involved with groups of other parents and kids with DS for support and so that the kids can have 'play dates'. Its so great to see how they brighten up when they are around other kids with the same condition. And they do understand each other when they 'talk'. It is amazing. It is always a party and so much love to go around.

DarkRevoultions · 07-12-2009, 09:56 AM

Quote:

Originally Posted by susankat

My grandson Aiden is less than 3 years old. He has down syndrome. On Thursday my sweet baby goes into surgery to try and repair both heart valves and put in a pace maker.
Please pray that this is a success and that he pulls through it fine.

As next step is if it doesn't work is a heart transplant.

Oh, this must be really stressful for you Susankat :( I also hope that your grandson will pull through.

susankat · 07-12-2009, 10:55 AM

We are all involved with so much its time consuming. My grandson goes to the little light house school here which is privately funded. We help raise money for it all the time. Soon will be mini laps in which the kids walk, ride or even carried around the course. I got Home Depot to sponsor my grandson this year. Then in Oct. We will have the buddy walk. Which is a national fund raiser for DSAT.

My daughter volunteers at the school on a weekly basis while Aiden is in school. This is a wonderful school that takes kids as young as 6 weeks old, and they go there until they are ready to be mainstreamed into public schools. With it being a private school the tuition usually runs about 17000.00 a year, but all the kids go free, that is why we try so hard to raise the money. Also the school has no help from the gov as its a religous based private school so the gov doesn't help.

06-27-2009, 01:53 AM	#1 (permalink)
susankat Pleco n bn breeder n BOSS susankat's Photo Gallery Join Date: Nov 2008 Posts: 5,412 Name: Susan Location: Tulsa, Ok Feedback: 9 / 100% Said "Welcome to Aquarium Forum" 2,081 Times Said "Thanks" 1,610 Times Was Thanked 1,807 Times in 1,548 Posts	Need your prayers My grandson Aiden is less than 3 years old. He has down syndrome. On Thursday my sweet baby goes into surgery to try and repair both heart valves and put in a pace maker. Please pray that this is a success and that he pulls through it fine. As next step is if it doesn't work is a heart transplant. __________________ SUCCESS IS MEASURED BY YEARS, NOT MONTHS!!! 220 Tank build http://www.aquariumforum.com/f15/sta...late-3253.html

06-27-2009, 02:47 AM	#2 (permalink)
MediaHound Here, fishy, fishy, fishy MediaHound's Photo Gallery Join Date: Jul 2006 Posts: 3,103 Name: Jarred Location: Florida My location Feedback: 18 / 100% Said "Welcome to Aquarium Forum" 4,158 Times Said "Thanks" 2,133 Times Was Thanked 948 Times in 610 Posts	Re: Need your prayers Prayers for Aiden and the family/friends/relatives. What a difficult time this is for you all, hope he pull through it fine.

06-27-2009, 03:16 AM	#3 (permalink)
fishfinder Goodwill Ambassador fishfinder's Photo Gallery Join Date: Aug 2008 Posts: 376 My location Feedback: 0 / 0% Said "Welcome to Aquarium Forum" 372 Times Said "Thanks" 53 Times Was Thanked 153 Times in 105 Posts	Re: Need your prayers Prayers, and hang in there. Heart problems are a common condition with down syndrome children. Just be there for him and for your children. Its scary to think about a child that young going through this. But he's a little fighter to make it this long without surgery. Hugs for everyone. Last edited by fishfinder : 07-13-2009 at 02:28 AM.

06-27-2009, 06:11 AM	#4 (permalink)
JIM Banned JIM's Photo Gallery Join Date: May 2009 Posts: 1,136 My location Feedback: 0 / 0% Said "Welcome to Aquarium Forum" 287 Times Said "Thanks" 2,045 Times Was Thanked 609 Times in 385 Posts	Re: Need your prayers We will all have you in our prayers, Its so hard to find the words to express the sympathy at a time like this, especially for me when its a child. Just be strong for him, and know we are all beside you.

06-27-2009, 12:09 PM	#5 (permalink)
gypsyfla gypsyfla Join Date: May 2008 Posts: 938 Location: Davie Fl Feedback: 1 / 100% Said "Welcome to Aquarium Forum" 3,304 Times Said "Thanks" 42 Times Was Thanked 194 Times in 181 Posts	Re: Need your prayers Thoughts and Prayers are with You and Your family

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06-27-2009, 01:05 PM	#6 (permalink)
Verse 34k Posts: n/a Feedback: / %	Re: Need your prayers He will be in my prayers. God's blessings to him

06-27-2009, 02:16 PM	#7 (permalink)
susankat Pleco n bn breeder n BOSS susankat's Photo Gallery Join Date: Nov 2008 Posts: 5,412 Name: Susan Location: Tulsa, Ok Feedback: 9 / 100% Said "Welcome to Aquarium Forum" 2,081 Times Said "Thanks" 1,610 Times Was Thanked 1,807 Times in 1,548 Posts	Re: Need your prayers Thanks everyone. This is his second surgery. The first one was at 4 months old, and we almost lost him then. He was on life support for a week as his heart swelled and stopped beating. Aiden is such a tiny fellow and that is where most of the problems arise. He weighed a little over 2 pounds at birth due to having to be born 2 months early. He is still under 25 lbs. __________________ SUCCESS IS MEASURED BY YEARS, NOT MONTHS!!! 220 Tank build http://www.aquariumforum.com/f15/sta...late-3253.html

07-02-2009, 02:01 PM	#8 (permalink)
susankat Pleco n bn breeder n BOSS susankat's Photo Gallery Join Date: Nov 2008 Posts: 5,412 Name: Susan Location: Tulsa, Ok Feedback: 9 / 100% Said "Welcome to Aquarium Forum" 2,081 Times Said "Thanks" 1,610 Times Was Thanked 1,807 Times in 1,548 Posts	Re: Need your prayers Aiden is out of surgery and is doing well. Both valves were able to be replaced and the Glenn procedure was avoided. He is in his PICU room and we are waiting to see him. __________________ SUCCESS IS MEASURED BY YEARS, NOT MONTHS!!! 220 Tank build http://www.aquariumforum.com/f15/sta...late-3253.html

07-02-2009, 05:40 PM	#9 (permalink)
Chickadee Banned Chickadee's Photo Gallery Join Date: Nov 2008 Posts: 1,323 Name: Rose Location: Nebraska, USA My location Feedback: 1 / 100% Said "Welcome to Aquarium Forum" 426 Times Said "Thanks" 707 Times Was Thanked 681 Times in 466 Posts	Re: Need your prayers You and your family are in my thoughts and prayers and I do hope that he will be in God's hands. May the Lord bless your family each and all. Rose

07-05-2009, 02:18 PM	#10 (permalink)
susankat Pleco n bn breeder n BOSS susankat's Photo Gallery Join Date: Nov 2008 Posts: 5,412 Name: Susan Location: Tulsa, Ok Feedback: 9 / 100% Said "Welcome to Aquarium Forum" 2,081 Times Said "Thanks" 1,610 Times Was Thanked 1,807 Times in 1,548 Posts	Re: Need your prayers Aiden has done great this time around. All tubes have been removed, pacemaker is working great. and he may get to go home Monday or Tuesday. __________________ SUCCESS IS MEASURED BY YEARS, NOT MONTHS!!! 220 Tank build http://www.aquariumforum.com/f15/sta...late-3253.html

07-05-2009, 03:19 PM	#11 (permalink)
fishfinder Goodwill Ambassador fishfinder's Photo Gallery Join Date: Aug 2008 Posts: 376 My location Feedback: 0 / 0% Said "Welcome to Aquarium Forum" 372 Times Said "Thanks" 53 Times Was Thanked 153 Times in 105 Posts	Re: Need your prayers That is such wonderful news!! My heart has been with you and your family the whole time. You have my hopes for Aiden's continued improvement and peace for the family.

07-05-2009, 03:55 PM	#12 (permalink)
JIM Banned JIM's Photo Gallery Join Date: May 2009 Posts: 1,136 My location Feedback: 0 / 0% Said "Welcome to Aquarium Forum" 287 Times Said "Thanks" 2,045 Times Was Thanked 609 Times in 385 Posts	Re: Need your prayers That is wonderful news I have had that little guy in my thoughts all week. Im so glad everything turned out so well. Please keep us updated on his recovery.

07-05-2009, 05:30 PM	#13 (permalink)
Oldman Water Chemistry/ LiveBearer Specialist Oldman's Photo Gallery Join Date: May 2009 Posts: 343 Location: Forsyth, IL My location Feedback: 0 / 0% Said "Welcome to Aquarium Forum" 4 Times Said "Thanks" 1 Times Was Thanked 113 Times in 92 Posts	Re: Need your prayers That is great to hear Susan. We were all pulling for him. __________________ Fishless cycling

07-05-2009, 09:12 PM	#14 (permalink)
Chickadee Banned Chickadee's Photo Gallery Join Date: Nov 2008 Posts: 1,323 Name: Rose Location: Nebraska, USA My location Feedback: 1 / 100% Said "Welcome to Aquarium Forum" 426 Times Said "Thanks" 707 Times Was Thanked 681 Times in 466 Posts	Re: Need your prayers Great news! So glad to hear it and know it is a big load off your mind and heart. We will continue the prayers for his complete recovery. Rose

07-12-2009, 06:42 AM	#15 (permalink)
Chickadee Banned Chickadee's Photo Gallery Join Date: Nov 2008 Posts: 1,323 Name: Rose Location: Nebraska, USA My location Feedback: 1 / 100% Said "Welcome to Aquarium Forum" 426 Times Said "Thanks" 707 Times Was Thanked 681 Times in 466 Posts	Re: Need your prayers How is Aidan doing? Did he get to go home and is all well with your family? Rose

07-12-2009, 08:43 AM	#16 (permalink)
susankat Pleco n bn breeder n BOSS susankat's Photo Gallery Join Date: Nov 2008 Posts: 5,412 Name: Susan Location: Tulsa, Ok Feedback: 9 / 100% Said "Welcome to Aquarium Forum" 2,081 Times Said "Thanks" 1,610 Times Was Thanked 1,807 Times in 1,548 Posts	Re: Need your prayers Sorry about not updating this. Aiden is at home and doing good. Still having a hard time crawling or using his gait trainer because of being sore, and getting pretty bored. Goes to dr tomorrow so will post more when I get more info. A little side note. Since he is so small and wont enjoy Disney World very much, The make a Wish program is going to build him a big Disney playground in his back yard. __________________ SUCCESS IS MEASURED BY YEARS, NOT MONTHS!!! 220 Tank build http://www.aquariumforum.com/f15/sta...late-3253.html

07-12-2009, 09:13 AM	#17 (permalink)
orion Entertainment Commitee Join Date: May 2009 Posts: 314 My location Feedback: 0 / 0% Said "Welcome to Aquarium Forum" 112 Times Said "Thanks" 335 Times Was Thanked 93 Times in 72 Posts	Re: Need your prayers still n prayer sidenote that is awesome about the playground i have a friend here that has a son that is about the same he belongs to the lil lighthouse org pretty cool stuff wife and i volunteered over there yesterday for a big function. http://www.littlelighthouse.org/ __________________ the day is almost apon us to engage our second amendment rights

07-12-2009, 09:36 AM	#18 (permalink)
fishfinder Goodwill Ambassador fishfinder's Photo Gallery Join Date: Aug 2008 Posts: 376 My location Feedback: 0 / 0% Said "Welcome to Aquarium Forum" 372 Times Said "Thanks" 53 Times Was Thanked 153 Times in 105 Posts	Re: Need your prayers What wonderful news about Aiden. And he'll have his own Disney World! The kids are so happy all the time. Later, when Aiden feels better, I hope Mom and Dad will get involved with groups of other parents and kids with DS for support and so that the kids can have 'play dates'. Its so great to see how they brighten up when they are around other kids with the same condition. And they do understand each other when they 'talk'. It is amazing. It is always a party and so much love to go around. Last edited by fishfinder : 07-13-2009 at 02:26 AM.

07-12-2009, 10:55 AM	#20 (permalink)
susankat Pleco n bn breeder n BOSS susankat's Photo Gallery Join Date: Nov 2008 Posts: 5,412 Name: Susan Location: Tulsa, Ok Feedback: 9 / 100% Said "Welcome to Aquarium Forum" 2,081 Times Said "Thanks" 1,610 Times Was Thanked 1,807 Times in 1,548 Posts	Re: Need your prayers We are all involved with so much its time consuming. My grandson goes to the little light house school here which is privately funded. We help raise money for it all the time. Soon will be mini laps in which the kids walk, ride or even carried around the course. I got Home Depot to sponsor my grandson this year. Then in Oct. We will have the buddy walk. Which is a national fund raiser for DSAT. My daughter volunteers at the school on a weekly basis while Aiden is in school. This is a wonderful school that takes kids as young as 6 weeks old, and they go there until they are ready to be mainstreamed into public schools. With it being a private school the tuition usually runs about 17000.00 a year, but all the kids go free, that is why we try so hard to raise the money. Also the school has no help from the gov as its a religous based private school so the gov doesn't help. __________________ SUCCESS IS MEASURED BY YEARS, NOT MONTHS!!! 220 Tank build http://www.aquariumforum.com/f15/sta...late-3253.html

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